Thursday, January 23, 2014

24012014: IV in tropical countries

I guess because we live in a humid tropical country many wouldn't have thought that people here could be affected by Ichthyosis Vulgaris as well. Of course without the dry winter, it is much better here. However just like during summer, the whole year of sun caused side effects as well. 

Due to the sun, the skin sweat, though not as much as normal-skin people, it causes itchiness and rashes. The heat burns the skin, causing redness and peeling. I read that many think their skin got better after they go under the sun for a while, but here in Malaysia, I don't think going under the sun will be a good idea.

The sun doesn't come with a chilly breeze, just stingy extremely hot sun which might cause skin cancer, unnecessary tans or any other skin disorders.

In fact I have found some people with Ichthyosis Vulgaris in Malaysia! It is of course not an active topic, we don't even have proper care for it and doctors don't even know what is wrong with us. After I wrote a post on my personal blog, one of my friend read it and told me "ooooh now I know what is wrong with me, now I know the name of my skin disorder". Then I was looking for Ichthyosis Vulgaris creams selling in Malaysia and bumped into a girl through a forum who has Ichthyosis Vulgaris, but apparently there are only two of us with such disorder in the forum because no one replied haha~

So there, besides my Dad and my brother who has Ichthyosis Vulgaris, I just found 2 other Malaysians having Ichthyosis Vulgaris. Not so bad, I had always been sad because I am the only girl affected in the family, and you know how important is the skin to a female. Thus I believe there are many other like me even in Indonesia, Thailand or Singapore, just that our conditions might defer from these living in seasonal countries.

Of course we feel grateful but we still feel different and uncomfortable. I hope we can open up and learn that this genetic disorder is not any of our mistakes but it is God probably trying to make us unique.


  1. Hi! Thank you for writing. I'm from Finland and I have Ichthyosis Vulgaris. It is very hars winter here so I have been planning to move somewhere tropical climate. I haven't been travelling so much but my skin is better in summer times. I would like to know how often you should use body lotions in tropical climates? Do you think it could be possible to manage without any greasing? I know my eye and breath problems would heal.

  2. Hi, even in tropical climates I have to apply lotion at least once a day. and every time after I shower, if I shower twice a day then I'll apply twice. The lotion I am currently using (Vaseline) is not greasing at all, in fact it gives and cooling and relief feeling :)